TWLOHA

To Write Love On Her Arms.  I ran across that web site a long time ago and was really touched by what I saw.  I’m way, way too old for them;  their ministry is for young people who are depressed, who hurt themselves,  not old ladies like me.

TWLOHA  are full of compassion and love and their mission is to reach out in love and get help for those who need it the most.

SI can be so scary, so stigmatizing for a lot of people, they are repelled by what they see when they see the marks, the scars.  So if only someone could write Love on their arms….that they came up with that idea, it just fills me with hope for those people, the ones that they reach.  I have never, ever heard anyone react with compassion to SI. Thank you, TWLOHA, thank you for busting the stigma, for acting with love and compassion, for saving lives.

I want to shout out to the hill tops, to everyone that I see, this is love in action!

Thank you TWLOHA!!!

Check the website out and if you like what you see, consider supporting the ministry.

 

fail…

Yet again I bit off  more than I could chew and I had to rip out the lace.  It’s just too hard, takes more concentration than I can muster now.

I went to the Opera today. Of all places,  I went to the opera.  With my daughters.  My youngest daughter and I got my oldest daughter tickets to see Casanova’s Homecoming for her birthday.  It was pretty funny.   Our tickets were cheap seats, so it was hard to see.  They had the words projected on a small screen above the stage, even though the opera was in English  it was still hard to understand at times, but I couldn’t see a lot of the time because of the seating.

But it was funny.  Lots of plot twists and turns.  The story line was strange.  More than I can describe now.  I got a chance to dress up and get out of the house, which was very good for me.  I’ve been very isolated.

My sisters and kids have joined facebook, like everyone else on the planet it seems.  I have avoided it because it just seems like an exercise in humiliation to me.  I would have no one to “friend” so I just see no point,  and this would embarrass me when my family would see my total lack of friends when they add me to their contacts or “friend” me or however that works.  They have been pressuring me to join anyway because it’s “fun.”

So I decided to set up an account.  Went through the process, declining the offers to find friends/contacts for you because it would be an exercise in futility.  Added my family as friends, etc.  Then got to the part where they suggest friends for you.  That’s when I realized how small my world has become and how rich my families lives are because they suggest you add the friends of those you have added as friends to your facebook page.   And I felt so hopelessly alone and so fucking embarrassed by how I’ve lived.

So I deleted the account, emailed those whom I friended to tell them that I just deleted the account and wished I hadn’t done it to begin with.

One of my sisters isn’t talking to me lately, either and I have no idea what I did to piss her off, I will likely never know. She is a drama queen, used to being the Queen of her Castle and is sometimes very passive aggressive.  I guess she now communicates via facebook.  Oh well.

We were discussing in therapy last session about how little support I’ve gotten over the years from my family.  How that’s made it very difficult for me to trust.   I need to let go at some point, just stop expecting what they cannot give and then I’ll stop getting hurt.  You’d think I’d learn after all these years.

These are the people who I consider my support system, and I’m just now realizing that they are no support, not at all.  I’m afraid that I can’t change, I’m afraid to change.  I can’t live like this anymore, it hurts too damn much.  I’m afraid to trust anyone.

losing it

I’m into the thick of it now. I’m depressed. Thought I could keep it at bay but not this time.

I’m trying to knit some lace for my daughters.  Print O’ The Wave and Swallowtail Shawl’s.  I’ve started and ripped them many, many times over.  I think I have it down now.  I’m using lace weight yarn from Knit Picks in a teal color, can’t remember which one, for the Print O’ The Wave shawl

and Elan’s Silken Kydd in pink for the Swallowtail shawl.

I’m not too sure if I’m going to keep the Swallowtail shawl going, I’m not that pleased with how it’s turning out on the size 6 needles.

Knitting these lace patterns with their fine lace yarn is taking concentration that I don’t have.  But I really want to learn how to do this.  Knitted lace is so beautiful.  If I can put a little of myself, and my love for my daughters into this lace…

(BTW, the pictures are not mine, Print O The Wave if taken from Eunny Jang’s excellent web site, eunnyjang.com, the swallowtail shawl pic is from www.befogged.co.uk) When I get enough done, maybe I’ll take a pic and post my progress.

My goal is to give them something from me that is worthy and beautiful.  I want to give something to my son’s as well, but I haven’t figured out what.  There is a pattern for a knit blanket called “Hemlock Ring” that they might someday appreciate.  Key word, some day.

Youngest son had the flu last week, I’m sure it was H1N1 as DH and both DS’s had the seasonal flu shot earlier this year.  He is still run down and coughing, sore throat, no energy but no more fever.  I’m worried about him.  I think he should see the doc.

As I was waiting for him when he was getting his hair cut last night, I noticed once again that it is impossible for me to read or do anything when there are people around.  The noise and commotion fill my head, it’s impossible for me to tune it out.  I just give up.

Made snickerdoodles tonight from the America’s Test Kitchen Family Cookbook, and it is the best snickerdoodle recipe that I have ever tasted!  I’ll be shocked if they last through tomorrow.

My sister was here a few nights ago.  She married well.  I guess that’s a good way to put it.  As long as she stays married, she wont hurt for money.  We, on the other hand, have struggled in this area most of our married lives.  And now with the downturn in the economy we are struggling yet again.

I have given up my harp and my guitar, two things that have defined me.  We are filing bankruptcy when we can pay the lawyer, isn’t there a certain irony in that?  I don’t talk about this to anyone.  A lot of people are struggling now.  It just IS.

So  anyway, my sister comes over in her new Passat, dressed to the nines and I’m in torn up sweats, she has her new laptop so she can show me this new notation software that she bought for $100 that she can plug into her baby grand electric piano. She doesn’t know that I don’t have my guitar  anymore, that I had to sell it so we could make ends meet…she knows that I had to sell my harp, though…she had just come back from a vacation in Colorado and Wisconsin, and yes, I’m happy for her.  But  I just could not muster up any enthusiasm at all for her.

I’m ashamed to admit that all I could think of were the times that I’ve shown quite a lot of generosity toward her and others, just because I loved them and I could.  Times that I gave them things like sewing machines, good, working, sewing machines, not junk.  Stuff like that, and how it just didn’t matter. I will never, ever bring it up.  I didn’t give them stuff to get anything out of it.  I did it because I wanted to do it. But that generosity has never been reciprocated.

That old saying, what goes around, comes around just isn’t true.  It just isn’t true.

And I think that I’m tired of this life.  I really am tired if this life.  I can’t do this anymore.

my education

I’ve had the Alan Parson’s Project stuck in my brain for 3 days now.  The songs, The System of Dr. Tarr and Professor Fether, and The Raven.  Just what you need to make you feel better, just what you need to make you feel…you’re in need of Dr. Tarr and Professor Fether…Doth Quoth the Raven….Evermore….

It occurred to me that I got my Edgar Allen Poe education via the Alan Parson’s Project and my classical music exposure via Looney Tunes.  Pretty pathetic.

I should update about the school situation but I don’t want to do it right now.  I’m pretty depressed.  Not about the school stuff, that seems to be moving forward in a positive way actually, but I’m drained and depleted and heading into a difficult time of year anyway.

I’m lonely, isolated, stuck, and depressed and see no way out.  I’m not sleeping well.  I don’t want to live like this anymore.

 

life’s little reminders

Just when I was telling myself that I’m not bipolar.  I’ve been relatively stable for some time now, gee, maybe I should think about going off the meds…

I notice that I’m up all night long again.  Meds aren’t putting me to sleep.  Moods are swinging hard and fast.  I feel very grateful that I have a relatively minor disorder and that I’m not so far gone that I don’t recognize this for what it is.  Or maybe I’ve just been burned one too many times and I’m finally taking it seriously.  I’m not going to let it get out of control this time.  This is usually this start of the crash and burn.  I don’t have the fun mania’s that I hear about.  I get goofy but it’s short lived.  It quickly turns into irritable hypomania then into darkness.

Seroquel isn’t knocking me out.  I could take more but Seroquel is a weight gainer.  Always a trade off.  Sanity or vanity, or diabetes or heart disease or tardive dyskinesia…Topamax is my mood stabilizer.  Could increase that I suppose but could I get any dumber?  Topamax has the nickname Dopamax because of its cognitive side effects.  I have been getting more and more depressed, but delusional me wanted to deny that and go off meds.  Antidepressants backfire on me.  No relief there.  Perhaps a lobotomy would work.

Enough of that.  I just baked a batch of cookies.  From the Cooks Illustrated Family Cookbook.  Last week I baked their Snickerdoodle recipe and I must say it was delicious.  I give it 3 thumbs up.  Tonight, at midnight, I made the sugar cookie recipe.  This one was not my favorite sugar cookie recipe. I give it a raspberry and 1/2 a knuckle.  It called for all the yummy cookie ingredients, real butter, eggs, vanilla.  Maybe my technique was off.  I like my gramma’s better, but it feeds an army.  Her’s calls for shortening and butter and is just divine.

So I think I’m going to knit my sister’s penis shaped lip balm cozies for Christmas, that is if I can muster up enough talent to do it.  I’ve tried to knit my daughter a shawl with this yarn called Noro Kureyon.  It looks like Margaret the Trash Heap.  This yarn sucks.  I read reviews about it, rave reviews.  The colors are beautiful! Yarn is lovely,  wonderful to work with.  HAH!  The yarn has little pieces of sticks in it.  It’s spun so poorly that it’s like chunks of roving and then it goes to tight string like lengths of yarn.  It’s wool, itchy, stick laden wool.  I will never buy Noro Noro “>Kureyon again.  I made a scarf out of Noro Silk Garden and I liked that stuff, not Kureyon.  Now I have to frog Margaret the Trash Heap and figure out what to do with all that crappy yarn.

I wonder if it’s a “mom” thing, this protective drive we have.  It’s almost primal.  I become Wonder Woman when it comes to my son.

I’ve been working on the follow up letter to send to the district.  I do not appreciate the threat against voicing my concerns about the teacher refusing to implement my son’s IEP.  I don’t appreciate being told not to worry about failing grades, that they are meaningless.  I don’t appreciate being told by the teacher that she knows better than the SPED team what my son needs when he is failing her class.

This also goes against my nature.  I don’t like making waves.  And I’m not looking  forward to fighting her retaliation.  I didn’t go to college and I don’t remember much of anything about composition so I’m having a hard time putting the letter together.  I have good advice, though, from a very good LD/SPED forum, and  I’m very grateful to the kind, experienced and very intelligent people there.

I’m trying not to let my emotions get in the way.  I’m trying to lay out the facts.  I tried to do that at conferences, too, and I actually did OK, even amid the “squeaky wheel” accusations and “shouting’ accusations.  It wasn’t until that story about DS that made me cry that I lost it.  That shook me because I couldn’t stop, and I mean I couldn’t stop for hours.  I have to get a handle on the crying if I’m to fight this, and it looks like this will be a royal battle.

Squeak

I am so pissed, so flabbergasted, almost speechless.  Almost.

Battling the freaking SCHOOL of all things.

I got into an argument with the teacher at conferences today.  First of all, she claimed that DS wasn’t in her class.  We go to her room, she asked who we were, we said, DS’s parent’s and she said that she didn’t think that she had DS in her class.  I said, “oh yes you do…” (I said it like that, too.)

Not a good start.  She dug out the grade sheet and realized that DS is a SPED kid and I am a “squeaky wheel” (her term, I later found out) so she called in SPED case manager and SPED support teacher.

Start going through grades, groups and I begin to disagree with her methods.  She is not used to people disagreeing with her.  She gets defensive.  I point out an “F” that he gets in a paper in which he is to find “irony” – tough concept for ASD kids, and this is a group assignment, another tough thing for ASD kids.  I think that since he is having enough trouble with the concepts, since he is barely passing, that perhaps he shouldn’t be in the group that he is in.  Teacher disagrees, citing another assignment in which DS received  “D-” and this clearly shows …WHAT?? I don’t know?

I then say A D MINUS?? a little too loudly and teacher of the year accuses me of shouting at her.  I was not shouting.  Trust me, the whole damn school would have known if I was shouting.  She then rants at me about being a “squeaky wheel” and how my being a squeaky wheel is causing resentment and retaliation and that it can create unfairness, that SPED para has to give DS undue attention that she could be giving other students because I am being a squeaky wheel. Teacher doesn’t elaborate as to what retaliation we can expect.

I tell TOTY that I will NEVER apologize for being a squeaky wheel.  Teach says that I should apologize and I then tell her that perhaps she can no longer teach DS objectively.  This pisses off TOTY to no end and she proceeds to tell me that she goes out of her way to teach these students, by which she means kids with ASD, I think, and has for many years and that she knows how to cater to their needs, blah blah blah. More blah, blah, blah.

As my eyes glaze over, I tell her that I apologize for raising my voice, I tell her I don’t want an adversarial relationship with her, however I will NEVER apologize for being the squeaky wheel.  I then ask if we can we discuss my son’s academic progress and get us back on track.

So I ask what modifications she is using with his classwork.  She said there aren’t any in his IEP.  I say, yes there are.  She said, no there aren’t.  I ask if anyone has a copy of his IEP as I didn’t bring one.  SPED para has one.  She gets out the list of mods written into his IEP. (I practiced restraint and didn’t get a smug look on my face, either, when I have clearly proven her wrong.)  We go over them one by one. Teacher tells me why DS doesn’t need the modifications.  Teacher tells me that most 9th graders struggle with the same issues that my son struggles with. I didn’t realize teacher has the qualifications to diagnose or prescribe educational interventions.  This last sentence is dripping with sarcasm.

Para tells me what modifications she uses with my son.  They see that I am open to discussion about the modifications and that what we really need are accommodations to the work and the hostility lessens somewhat. (And yes, it really was a hostile atmosphere.) They tell me not to look at actual GRADES.   You know, all the “F’s” and “D-’s”  WTF????  Just listen to what they TELL you, it will all be all right.  Everything is just fine.  I don’t understand this one at all.  There is no problem, he’s just like everyone else.   Someone explain this to me.

We end the conference with SPED teacher commenting that my son is a sensitive kid, a young kid and that it’s scary for parents to trust teachers with their kids especially when they transition into High School.  Sort of excusing my assertiveness (perceived aggressiveness?).  I tell them, quite honestly, that I AM protective .  I WILL BE the squeaky wheel.  I tell them that I know that DS needs SOMETHING but that I don’t always know WHAT that is and that is frustrating.

Then SPED case manager tells a story about DS’s sensitivity that gets me crying and I can’t stop so that probably reinforces the idea that I’m just an unstable, overprotective blowhard.

I don’t tell them that I resent the hell out of that teacher trying to tell me that advocating for my son is a bad thing, will create resentment and an unfair advantage, cause him to resent me and some sort of unknown retaliation.  I really wonder if she CAN teach him objectively.  The stupid BITCH.

And now I feel like a total failure.  I’m second guessing myself.  My inclination is to bash myself and let shame beat me up.  My addict self would love to use this as a lethal weapon but I wont allow it.  This is so damn hard…when you get kicked for doing the right thing.  This fucking sucks.

Oh, the Squeaky Wheel label?  As far as I can tell, it is because of 4 emails regarding concerns about her class.  All due to her not reading or following his IEP  I assume this because she did not know about the modifications, and he is getting a D- to an F in her class and this concerns me.  Silly me, I should just shut the hell up and let her teach.

small victory

Man, I was hit out of the blue with an ancient memory accompanied by a deluge of shame tonight.  Shame that weighs you down and makes you want to hide and want to just die.

I chose to rise above that memory and reject that shame.  I had to really think about how to chose not to live in that shame.  How do I reject this shame and rise above it?  I was able to do it.  I don’t know how, but I was able to do it.

I’m not going to go into that memory now.  I’m going to keep it in the past.  Part of what keeps me down, keeps me trapped in my house, afraid of living is living in the past.

I chose to rise above.  I chose life over death.  This is huge.

crabby

The psychologist seemed nice enough.  Didn’t finish going through my history, therapy goals and such, though.  Telling my DBT/therapy tale brought back a lot of shame.  Today was a bad day.  I was very moody, short tempered.  Couldn’t think of a skill to use, didn’t want to use any damn skill.

I’m freaking out about filing a complaint against old therapist.  I’m afraid that I’ll get in trouble.  Stupid, I know.  But I’m afraid.  For some reason I’ve come to associate him with all the bad authority figures in my life and I’m afraid that he’s going to hurt me, even though the rational part of me knows that it makes no sense, a bigger part of me is a frightened child.  I don’t think that complaint will get filed.

I’m trying to shake that off and look forward.  Next session with the new psych will be about therapy goals.  I need to come up with those, what’s realistic for me.  I need to keep pushing myself to move forward, no matter how small the steps may be I have to move forward.  And I did make progress today, even though I was crabby.  I can still move forward when I’m crabby, and crabbiness didn’t have to define my whole day.

baby steps

I’m seeing a new psychologist tomorrow.

I’m still a bit labile, I hope I don’t cry.  I hope I can  keep the mindset that I’m hiring her to help me.  Emphasis on the HIRING part.  I’ve been perceiving my therapists as authority figures and that’s not healthy.

In thinking about what my expectations of therapy are, I’ve been wondering if my expectations have been very realistic.  I am in my forties.  I’ve been very isolated.  I could probably be diagnosed as agoraphobic. ( I haven’t been formally diagnosed as such).  I am easily overwhelmed.  I have little to no outside support.

What changes can I realistically make?  I tend to look at the finish line and panic.  By that I mean, envision myself in a steady job, competently earning a nice income and navigating my way in the real world with ease.  This is something that I want, this is something that I don’t have the tools to actually make happen at this time and it scares the hell out of me.

So I’m wondering what is realistic?  How many people my age, who have isolated themselves for so many years have been able to crawl out of that hell?  Who have no support or friendships because of that isolation?

But I’m trying so hard not to get bogged down by my past.  I’ve been trying so damn hard not to let that stop me from trying anyway.  I have to start where I am, no matter what my circumstances are.  I am here.  I can’t change that.

I’ve been thinking about college.  I can’t afford classes right now.  Our public library system has an online learning center with free courses in math, business English, adult job skills refresher courses among many other resources.   So I’ve been looking them over and sticking my toe in and testing out the waters, seeing how much I’ve forgotten over the years.  I never went to college.

I read something on a forum, someone mentioned that they had once been very obsessed with themselves, and once they had made the decision to stop being so self obsessed, life became so much easier.  That really hit home.  Hard to hear, but oh, so true.  So I’ve been trying to stop being so damn self obsessed, and I’ve been trying to stop dwelling on the obstacles in my way.  They just tend to bog me down and stop me in my tracks.

All of this scares the hell out of me.